The effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study

Ryan, Jennifer M, Theis, Nicola ORCID: 0000-0002-0775-1355, Koufaki, Pelagia, Phillips, Shaun, Anokye, Nana, Andreopoulou, Georgia, Kennedy, Fiona, Jagadamma, Kavi C., van Schie, Petra, Dines, Hannah and van der Linden, Marietta L,. (2020) The effect of RaceRunning on cardiometabolic disease risk factors and functional mobility in young people with moderate-to-severe cerebral palsy: protocol for a feasibility study. BMJ Open, 10 (7). e036469. doi:10.1136/bmjopen-2019-036469

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Abstract

Introduction: There is consistent evidence that people with cerebral (CP) do not engage in the recommended physical activity guidelines for the general population from a young age. Participation in moderate-to-vigorous physical activity is particularly reduced in people with CP who have moderate-to-severe disability. RaceRunning is a growing disability sport that provides an opportunity for people with moderate-to-severe disability to participate in physical activity in the community. It allows those who are unable to walk independently, to propel themselves using a RaceRunning bike, which has a breastplate for support but no pedals. The aim of this study is to examine the feasibility and acceptability of RaceRunning for young people with moderate-to-severe CP and the feasibility of conducting a definitive study of the effect of RaceRunning on cardiometabolic disease risk factors and functional mobility. Methods and analysis: Twenty-five young people (age 5-21 yr) with CP or acquired brain injury affecting co-ordination will be included in this single arm intervention study. Participants will take part in one RaceRunning session each week for 24 weeks. Outcomes assessed at baseline, 12 and 24 weeks include body mass index, waist circumference, blood pressure, muscle strength, cardiorespiratory fitness, physical activity and sedentary behaviour, functional mobility, activity competence and psychosocial impact. Adverse events will be systematically recorded throughout the 24 weeks. Focus groups will be conducted with participants and/or parents to explore their views and experiences of taking part in RaceRunning. Ethics and dissemination: Approval has been granted by Queen Margaret University Research Ethics Committee (REC) and the South East of Scotland REC. Results will be disseminated through peer-reviewed journals and distributed to people with CP and their families through RaceRunning and Athletic Clubs, NHS trusts, and organisations for people with disabilities.

Item Type: Article
Article Type: Article
Uncontrolled Keywords: Paediatric neurology; Developmental neurology and neurodisability; Preventive medicine; Rehabilitation medicine; Sports medicine
Related URLs:
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RC Internal medicine > RC1200 Sports Medicine
R Medicine > RC Internal medicine > RC321 Neuroscience. Biological psychiatry. Neuropsychiatry > RC346 Neurology. Diseases of the nervous system
R Medicine > RJ Pediatrics
R Medicine > RJ Pediatrics > RJ125 Physiology of children and adolescents > RJ131 Children Growth. Child development
Divisions: Schools and Research Institutes > School of Sport and Exercise > Sports Leadership, Education & Society
Research Priority Areas: Sport, Exercise, Health & Wellbeing
Depositing User: Rhiannon Goodland
Date Deposited: 11 Jun 2020 13:07
Last Modified: 08 Jul 2020 12:57
URI: http://eprints.glos.ac.uk/id/eprint/8458

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